Update

I am out of words today. My brother left yesterday. The house seems very quiet. I put Zoe to bed and then toss and turn to the dog snoring.

So instead of my words I will give you Gerry’s update from the CaringBridge:
Jul 14, 2014 9:17 PM
After the incredible day on Saturday, yesterday and today have been more measured.

Steps completed today

Willi was completely weaned off the Fentanyl today. That infusion pump is off and fully charged for someone else to use.

Another step forward.

We also met with numerous other medical professionals, each with a different role in Willi’s rehabilitation.

The intensivist, a speech therapist, an occupational therapist, a physical therapist, a dietary specialist, the trauma team, the neurosurgeon….

“Prepare for the worst and hope for the best”

His rehabilitation and recovery will almost certainly be a progression of gradually less dramatic milestones measured in weeks and months and more rather than hours and days. See Mary’s update for the details.

The kid has made monumental gains, but much work remains. The future still remains completely unknown.

Next step:

Tonight the doctors will begin preparing to remove the drain and sensor from Willi’s brain. We anticipate the drain and sensor will come out of his head tomorrow.

As of now, Willi’s cerebrospinal fluid is draining externally. Once this stops, he will have to again resorb the CSF on his own. Also, he will no longer have a pressure sensor allowing us to look at a screen or device to measure the pressure in his head. Accordingly, they will do another CT scan later in the day to ensure the CSF is being resorbed rather than expanding the ventricle system in his brain.

Please think good thoughts, people. You are all appreciated more than you will ever know. Thank you.

More updates to follow.

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3 responses

    • Exhausted. My brother has gone back home and I’m trying to find a balance of normalcy for Z. I was writing posts in the morning when I woke up so early and wasn’t sleeping. Now I’m sleeping a tiny bit more. I’m terrible with change let alone violent upheaval. G and W need me in the sense of trying to make everything else run smoothly so they can do what they need to do. For today I am making see his life as normal as possible and making a trip to the zoo. Seems like an unlikely and impossible thing to do but I’m going to do it.

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